— Local young woman being denied treatment by Kaiser who continually appeal legal decisions urging them to treat her. A tragic case of ‘deny and delay until death’ —
A resident of Alameda, California, Angela “Annie” Wilson is a 36-year-old young woman with Spinal Muscular Atrophy (SMA)— a rare, genetic neuromuscular disability. In 2016, the FDA approved the first-ever treatment for SMA, which changed the landscape, outcomes, and life-expectancies for all living with SMA. This treatment, called Spinraza (nusinersen) was FDA-approved for all ages and types of SMA— and patients of all age ranges (adult & child) are being treated with Spinraza and are seeing benefits from it.
Unfortunately, Annie has been fighting Kaiser for this medication for nearly two years. She most recently won her hearing with the Administrative Law Judge-- that fully ruled in her favor. Despite this, Kaiser is still refusing to comply with the ruling and plans to appeal (again!). Kaiser's cowardly act is a blatant attempt to save money... and by delaying and denying, they are hoping her delicate condition will take a turn so they don't have to pay for it at all. To be frank, this treatment could literally extend Annie’s life.
And time is of the essence.
We are gaining momentum with our awareness campaign on social media (with 167 shares, and counting!) But, please, continue to read and share... we must do everything we can to hold Kaiser to account! This is wrong and unethical for Kaiser to single-out Annie in such a way.
If you’d like to help us with this life-saving effort, please email: firstname.lastname@example.org